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3232Why fatigue with a vestibular disorder feels so overwhelming.
https://balancebelt.net/en/why-fatigue-with-a-vestibular-disorder-feels-so-overwhelming/
Mon, 08 Dec 2025 09:26:59 +0000https://balancebelt.net/?p=13486If you live with a vestibular condition, you already know how draining it can be. Even on days when your symptoms are mild, you might feel like you’ve run a...
]]>If you live with a vestibular condition, you already know how draining it can be. Even on days when your symptoms are mild, you might feel like you’ve run a marathon just by getting through the morning. That exhaustion isn’t just tiredness, it’s your brain working overtime.
What’s really happening
Figure 1: How vestibular disorders affect the brain.
Your vestibular system normally tells your brain where you are in space. When it’s not working properly, your brain has to rely on your eyes and your body’s sense of position to fill in the blanks. That constant effort takes energy. Every movement, every head turn, every change in lighting or noise is extra work for your brain to process.
Fatigue is more than physical
It’s not just your body that feels drained. Your mind can too. Simple tasks like grocery shopping or scrolling on your phone can leave you foggy or irritable. The emotional side of fatigue can be just as tough as the physical side. You might feel frustrated, isolated, or even guilty for not being able to do as much as you used to.
What helps?
Some things that may help:
Try to see fatigue as your body’s way of asking for balance, not weakness.
Keep a journal to track when your energy dips, and look for patterns.
Pace your day by mixing active moments with quiet breaks.
Prioritise sleep and create small routines that help you wind down.
Eat nourishing foods and stay hydrated to support your body’s recovery.
Move regularly, as long as it feels safe and is guided by a professional who understands vestibular conditions.
And most importantly, remind yourself that rest is not a luxury. It’s part of recovery.
Rest is not luxury, its recovery!
You’re not lazy, you’re adapting
Fatigue doesn’t mean you’re doing something wrong. It means your brain and body are working harder than most people’s just to keep you standing and focused. Give yourself permission to rest without guilt.
If you’re looking for ways to feel more balanced and less exhausted as you go about your day, the Balance Belt could help ease some of that extra effort so you can focus on living again.
Written by Stephanie Steggehuis | Marketing Copywriter living with BVH and Oscillopsia
]]>From Constant Coping to Actually Living Again – Thanks to the BalanceBelt.
https://balancebelt.net/en/from-constant-coping-to-actually-living-again-thanks-to-the-balancebelt/
Thu, 27 Nov 2025 08:00:00 +0000https://balancebelt.net/?p=13432Mrs. De Vries’ Story About Her Balance Problems and the BalanceBelt In 2001, Mrs. De Vries first began experiencing balance problems. It started with mild but persistent dizziness. “I never...
]]>Mrs. De Vries’ Story About Her Balance Problems and the BalanceBelt
In 2001, Mrs. De Vries first began experiencing balance problems. It started with mild but persistent dizziness. “I never fell, and I never felt truly nauseous, but it did limit me in my daily life,” she explains. “At work, I had several long periods of sick leave, which was difficult. I really loved my job.”
At the time, she worked in psychosocial support and education at a regional cancer center. “I organized meetings for doctors, nurses, and other healthcare professionals to improve education and psychosocial care for cancer patients. It was work that meant a lot to me.”
However, as her symptoms progressed, her work became increasingly difficult to maintain. “I saw several ENT doctors—first in Den Bosch and later in Eindhoven—and they diagnosed Ménière’s disease. Eventually, I ended up with Professor Kingma in Maastricht. He determined that I had bilateral vestibular hypofunction. The explanation of what that meant hit hard, but it also gave clarity.”
In 2009, she had to stop working completely. “That was very difficult, because my work was a big part of my identity. But I simply couldn’t continue. What followed was a long period of searching, accepting, and learning to live with my limitations.”
A Long Road to Acceptance
The years that followed were dedicated to adapting to a new reality. “I was never afraid to go outside. I went for walks using a cane, because I wanted to keep enjoying nature.”
After a difficult period of grief and fatigue, she slowly found more stability around 2015. “With psychological support and physiotherapy-guided exercise, I gradually regained some balance. I learned to plan my days very carefully: resting the day before an activity and spending two days recovering after. Everything had to be done with caution. That worked—but it limited my life enormously.”
A Chance Discovery
It wasn’t until late August 2025 that she came across the BalanceBelt—completely by coincidence. “I was searching online for a video to explain my balance disorder to my French son-in-law. That’s how I found the BalanceBelt. I thought: I want to try that! Even though I had just become a widow and was in a difficult emotional period.”
The First Weeks With the Belt
She contacted the BalanceBelt team and was referred to a physiotherapist in Nijmegen. “I travelled to my first appointment without a cane, by train and then by bus — to the physiotherapist’s surprise. I am seemingly just mobile, so people do not see that I have balance problems.” During that first appointment, she didn’t notice much difference yet. The real change came once she started using the belt in her daily life.
A few days later, she went on a weekend trip with her daughter and son-in-law. “We walked three days in a row, went out for dinner, visited a city, and did some shopping. Normally, I would have been exhausted afterwards. But when I got home, I thought: Where is the fatigue? My daughter even said: ‘I think we are more tired than you are!’”
She could hardly believe it. “A week later, I walked with a friend in the dark, without a cane, on uneven ground. I waited for the fatigue to set in—but it didn’t. That’s when I knew: this really works.”
More Energy, More Freedom
Since using the BalanceBelt, her life has changed dramatically. “I have more energy, more days in the week. I used to have only two or three functioning days — now I have all seven. My mind feels calmer, I sleep better, I enjoy the world around me again.”
Even cycling short distances has become easier. “Before, I had to focus all my attention on cycling. Now I can look around and enjoy the ride.”
The effect is subtle, but powerful. “The belt has made my life so much richer. I can spend my energy on living instead of just coping. I have room in my head again.”
Enjoying Life Again
One of the Arabic mandalas designed by Mrs. de Vries.
Over the years, she had adapted her hobbies. From long walks and attending concerts, she moved to more seated activities such as sewing and drawing. “I design Arabic patterns; I make birth cards and birthday cards. If I ran out of energy, I could just stop and continue the next day.”
Now, with more energy, she can slowly rediscover what she wants her days to look like. “That will take some time — I’ve lived more than 20 years with limitations.”
She smiles: “I’m 75, but I feel more active than I have in years. Instead of slowing down, I’m becoming more energetic again. People say I’m glowing. And they’re right — I have all seven days of the week back!”
]]>The hardest part of Bilateral Vestibular Hypofunction isn’t the symptoms…. it’s feeling like you’ve lost yourself
https://balancebelt.net/en/the-hardest-part-of-bilateral-vestibular-hypofunction-isnt-the-symptoms-its-feeling-like-youve-lost-yourself/
Mon, 24 Nov 2025 09:19:29 +0000https://balancebelt.net/?p=13483Welcome to our new four-part series, written by Stephanie Steggehuis, sharing her personal insights into living with vestibular conditions. Across these blogs, Stephanie explores what it’s really like to navigate...
]]>Welcome to our new four-part series, written by Stephanie Steggehuis, sharing her personal insights into living with vestibular conditions. Across these blogs, Stephanie explores what it’s really like to navigate life with Bilateral Vestibular Hypofunction (BVH), from the physical challenges to the emotional impact. In this first post, she reflects on the hardest part of BVH—feeling like you’ve lost yourself.
Stephanie Steggehuis
When you first get a diagnosis like Bilateral Vestibular Hypofunction (BVH) or any vestibular condition, you expect dizziness, balance issues, maybe nausea. What you don’t expect is how deeply it changes how you feel about yourself. The hardest part often isn’t the physical symptoms. It’s realising that you’re not the same person you used to be.
The loss no one talks about
You might remember walking easily through a store, chatting with friends in a busy café, or driving without thinking twice. Now, things that used to feel effortless can seem impossible. It’s not just frustrating, it’s heartbreaking. BVH happens when both sides of your inner ear stop sending the right signals to your brain. That means your brain has to work much harder to keep you balanced, and every movement takes extra effort.
More than physical
The emotional side of vestibular disorders doesn’t get talked about enough. You’re grieving the version of yourself who could do things freely and confidently. Many people with BVH say that feeling “different” or “not themselves anymore” is harder to accept than the dizziness itself. It’s a strange kind of loss, because on the outside you look the same, but inside everything feels different.
Learning to live as the new you
Healing starts when you stop comparing yourself to who you were. That doesn’t mean you’re giving up. It means you’re allowing yourself to grow into a new version of you. A version that still deserves joy, confidence, and independence.
Try small steps that rebuild trust in your body. Work with a vestibular therapist to help your brain adjust. Make your home safer and easier to move around in. Be honest with friends and family about what you’re feeling. And most of all, be kind to yourself. Progress can be slow, but it’s still progress.
Finding yourself again
You might never go back to exactly who you were, but that doesn’t mean you can’t feel like yourself again. You’re still you, just with a different balance system. And with time, patience, and the right support, you can start to feel steady and confident again.
If you’d like to explore tools that can help you feel more stable and more like yourself, the BalanceBelt may help you regain confidence in your daily life.
The journey to adjustment can be challenging, but you’re not alone. In the next post, Stephanie will explore why fatigue with a vestibular disorder feels so overwhelming, helping you understand one of the most common yet often invisible challenges.
Written by Stephanie Steggehuis | Marketing Copywriter living with BVH and Oscillopsia
]]>“The BalanceBelt finally offers patients with severe balance loss something to be hopeful about.” – Prof. Dr. Raymond van de Berg
https://balancebelt.net/en/the-balancebelt-finally-offers-patients-with-severe-balance-loss-something-to-be-hopeful-about-prof-dr-raymond-van-de-berg/
Fri, 07 Nov 2025 08:55:44 +0000https://balancebelt.net/?p=13445At Maastricht UMC+, ENT specialist Dr. Raymond van de Berg has been working for years with patients suffering from severe balance disorders. “In the Netherlands, we’re basically the ‘last resort’...
At Maastricht UMC+, ENT specialist Dr. Raymond van de Berg has been working for years with patients suffering from severe balance disorders. “In the Netherlands, we’re basically the ‘last resort’ for people with complex balance problems,” he explains. “Patients come to us from all over the country, and even from abroad, because the expertise is concentrated here.”
Alongside his clinical work, Van de Berg is deeply involved in research on vestibular disorders, from diagnostics to innovative treatments such as the artificial balance organ and the BalanceBelt.
The power of interdisciplinary thinking
What drives him in this field? “Balance disorders are incredibly fascinating because they sit at the crossroads of ENT, neurology, ophthalmology, psychiatry, and even physics,” says Van de Berg enthusiastically. “It’s an area where logical reasoning, technology, and clinical experience all come together.”
The BalanceBelt: from idea to impact
Van de Berg became involved with the BalanceBelt through Prof. Herman Kingma, a pioneer in balance research and the inventor of the technology behind the belt. “In the beginning it was still a university project, but since the collaboration with Elitac Wearables, it has become truly professional,” he says.
The initial experiences with the BalanceBelt were very promising. “Some patients were absolutely ecstatic; others noticed less difference. But what stood out most is that there’s a group of patients who continue using the belt consistently, even after two years. That says something about the value they experience.”
According to Van de Berg, the BalanceBelt works particularly well for patients with severe bilateral vestibular loss, people who have literally lost their sense of balance. “In addition, there seems to be a subgroup of patients with an oversensitive balance system, such as those with 3PD (Persistent Postural-Perceptual Dizziness). For them, the belt mainly helps to restore confidence in their own balance system.”
Challenges and improvements
While he is enthusiastic, Van de Berg also sees challenges ahead. “The biggest one remains distinguishing the true medical effect from the placebo effect. That’s important for recognition, reimbursement, and further scientific validation.”
He also sees room for technical improvement: “The price is still a barrier. And beyond that, we could think of faster feedback, lighter materials, and more individualized settings for each patient.”
The Vestibular Implant (VI): taking the next step
In addition to research on the BalanceBelt, Maastricht UMC+ is also developing the Vestibular Implant (VI), an artificial balance organ. “It’s an implant that, just like a cochlear implant for hearing — electrically stimulates the vestibular nerve,” Van de Berg explains. “In that way, we aim to partially restore the reflexes of the balance organ.”
The potential is huge, but the road is long. “Ten years ago, we thought: within five to ten years this will be ready for patients. And now we’re still saying the same, mainly because of European regulations. The technology is there, the doctors are ready, the patients are ready, but the administrative barriers are enormous.”
Two technologies, each with its own role
How does Van de Berg see the relationship between the BalanceBelt and the Vestibular Implant? “The main difference is that the VI primarily restores reflexes, while the BalanceBelt supports balance. For many patients, that distinction is crucial: those who mainly suffer from balance instability can already benefit greatly from the BalanceBelt. The VI is a surgical option, something for later, or for patients with very severe loss.”
He even sees potential synergy between the two technologies in the future. “Who knows, they might complement each other. The BalanceBelt could be the first step, and the implant the second.”
Raising awareness is key
According to Van de Berg, there’s still much to be gained by improving awareness and diagnosis of balance disorders. “There are still many people walking around with bilateral vestibular loss without realizing it. Doctors and patients often don’t consider the balance system as the root cause. Greater awareness among general practitioners, ENT specialists, neurologists, and patients themselves is crucial.”
“Every step forward counts”
Van de Berg concludes on an optimistic note: “Whether it’s with an implant or with the BalanceBelt, every step that helps people with balance disorders move with confidence again is a victory. And that’s what we work on every day here in Maastricht.”
]]>Reclaiming independence: Interview with Claire Snape on BalanceBelt impact.
https://balancebelt.net/en/reclaiming-independence-interview-with-claire-snape-on-balancebelt-impact/
Fri, 03 Oct 2025 07:53:19 +0000https://balancebelt.net/?p=13396Claire Snape’s (audiologist at Royal Derby Hospital) journey into audiology wasn’t a straight line. After finishing school and A levels, she planned to study at university but didn’t get into...
]]>Claire Snape’s (audiologist at Royal Derby Hospital) journey into audiology wasn’t a straight line. After finishing school and A levels, she planned to study at university but didn’t get into her first-choice course. Determined to work in healthcare, she took a hospital job while exploring her options, initially considering speech and language therapy or physiotherapy.
By chance, a colleague suggested audiology, and at that time, in 1997, the profession could still be entered through an apprenticeship rather than a university degree. Claire seized the opportunity, training at the School of Audiology in Nottingham and combining hands-on clinical work with medical physics studies at People’s College. The apprenticeship route not only gave her direct clinical exposure from day one but also spared her university tuition fees.
She went on to build her career in Nottingham before moving to Derby in 2004, where her focus expanded beyond hearing aids into vestibular diagnostics and rehabilitation. Today, Claire works as part of a dedicated multidisciplinary team, delivering comprehensive balance and hearing care, and helping to develop streamlined clinics that bring together audiologists and ENT specialists for patient-centered solutions.
The Patients and Challenges of Vestibular Care
Claire explains that the types of patients she sees have changed over time. In the past, cases of labyrinthitis and vestibular neuronitis were more common, but recently she has noticed a rise in patients with Persistent Postural-Perceptual Dizziness (PPPD). These patients are often more complex, as they may have been on vestibular suppressants for too long, preventing proper compensation and rehabilitation.
She also sees patients with bilateral vestibular loss, though less frequently, around one case per month or every couple of months. For these patients, Claire and her team begin with diagnostic testing and then design tailored rehabilitation programs. Exercises may include head movement and gaze-stabilization tasks, visual-vertigo strategies, foam pad balance training, walking or standing routines, and whole-body exercises. Patients are encouraged to practice these exercises for short periods multiple times a day, with regular follow-ups to monitor progress and increase difficulty as needed. Additionally, resources such as a vestibular migraine video are recommended when relevant.
Among the main challenges Claire highlights are:
Encouraging patients to reduce reliance on vestibular suppressants.
Addressing mobility or pain issues, especially in elderly patients.
Managing long waiting lists, particularly for vestibular physiotherapy.
Limited access to advanced equipment, such as rotating chairs, which would make repositioning tests easier for patients with mobility or back problems.
Despite these challenges, Claire and her team remain focused on delivering practical, patient-centered vestibular care.
First Experiences with the BalanceBelt
Claire first learned about the BalanceBelt through Dr. Meehan, an audio-vestibular physician who now works privately. Dr. Meehan introduced her to the device and asked Claire to support with diagnostic testing and fittings. Claire was intrigued and excited to try this innovative technology, believing it could offer real benefits. Her only initial concern was whether patients with poor mobility or additional health issues (like spinal problems) would be suitable candidates.
One of the first patients she fitted was “Jenny”, a local woman with bilateral vestibular failure following a respiratory infection. Jenny had been symptomatic since early 2023, with low gain on all six semicircular canal tests and limited progress despite vestibular rehabilitation. By the time she was referred to Claire, she relied on a cane or walking pole, and significant physical support from her husband, especially outdoors.
During the initial assessment, Jenny performed standard standing and walking tests with and without the Balance Belt. After just 15–20 minutes of wearing it, she reported feeling slightly more confident, though the measured improvement was modest. Still, given her long history of symptoms, even small early gains were encouraging.
When Jenny returned about three weeks later, the impact was clear: she walked into the clinic without holding her husband’s arm and was no longer using her walking stick. She described the belt as “invaluable,” saying it had reduced her fear of falling, increased her independence, and allowed her to walk more confidently. Her husband also noticed she relied on him much less. Jenny even regained the ability to move more freely around her garden, a meaningful sign of restored independence.
Broader Implications and Takeaways
From her first experiences, Claire sees strong potential for the BalanceBelt in treating a wide range of vestibular patients, not only those with bilateral vestibular loss, but also unilateral cases and anyone experiencing veering or unsteady walking. She believes it could play an important role in improving mobility, safety, and independence across different patient groups.
Claire also raised the possibility of incorporating the device into the UK’s Access to Work, a governmental project, which helps employees secure practical aids (such as headsets or loop systems) to continue working effectively. The Balance Belt, she suggested, could similarly be offered to patients whose vestibular disorders interfere with their ability to work, providing both clinical and socioeconomic benefits.
As for next steps, Claire highlighted the need for greater awareness of the BalanceBelt among clinicians and patients. She is open to fitting more patients referred either by BalanceBelt or by Dr. Meehan. Looking ahead, she wondered how the device could be integrated into the NHS, perhaps with hospitals purchasing belts and loaning them to patients for defined treatment periods.
]]>BalanceBelt featured in Meniere’s Society and Spin Magazine
https://balancebelt.net/en/balancebelt-featured-in-menieres-society-and-spin-magazine/
Fri, 05 Sep 2025 14:27:49 +0000https://balancebelt.net/?p=13367We’re excited to share that the BalanceBelt has recently been featured by the Meniere’s Society.Earlier this year, our article was published on their website: Read it here. In this article...
We’re excited to share that the BalanceBelt has recently been featured by the Meniere’s Society. Earlier this year, our article was published on their website: Read it here.
In this article you can read for whom the BalanceBelt is suitable, which problems they experience, what the BalanceBelt does, and how it is available in the UK.
Figure 1: Menieres Society UK
Now, the story has also appeared in their magazine, Spin. You can find the online version here: Spin Magazine.
The magazine also describes how Professor Herman Kingma, after seeing a patient with severe BVL in 2003, developed the BalanceBelt to address the lack of treatment options. Clinical studies show that many BVL patients benefit, experiencing improved mobility, reduced anxiety, and a higher quality of life. Impressively, 80% noticed positive effects after just two hours of use, and some even returned to cycling.
]]>Meet Claire Potter: Specialist in Vestibular Physiotherapy
https://balancebelt.net/en/meet-claire-potter-specialist-in-vestibular-physiotherapy/
Thu, 04 Sep 2025 09:15:42 +0000https://balancebelt.net/?p=13279Claire Potter is a dedicated vestibular physiotherapist at a central London trust. Her journey into physiotherapy was inspired by a personal experience, her mother’s recovery from a serious knee injury...
Claire Potter is a dedicated vestibular physiotherapist at a central London trust. Her journey into physiotherapy was inspired by a personal experience, her mother’s recovery from a serious knee injury through physiotherapy. Initially interested in musculoskeletal care, Claire soon found her passion in neurological rehabilitation, eventually specialising in vestibular physiotherapy over the past three and a half years.
Working with patients suffering from chronic balance disorders, some with symptoms lasting up to 20 years, Claire finds reward in both the complexity and the life-changing potential of her field. From treating Benign Paroxysmal Positional Vertigo (BPPV), often with immediate results, to supporting those with Persistent Postural-Perceptual Dizziness (PPPD) and Functional Neurological Disorder (FND), her work blends science, empathy, and collaboration with psychology. Her enthusiasm for meaningful, measurable outcomes makes her a strong advocate for tools like the BalanceBelt.
Pushing Boundaries Despite Limited Resources
Claire is deeply committed to improving patient outcomes, yet she acknowledges the constraints of working within the NHS. While complex vestibular cases, particularly patients with conditions like PPPD or Functional Neurological Disorder, can benefit greatly from long-term care, NHS resources often limit treatment provision within the confines of economic viability. In her private practice, she has seen how patients thrive with extended care, highlighting a gap in what public services can currently provide.
Despite these limitations, Claire is grateful to be part of a well-resourced and forward-thinking team. The multidisciplinary team (MDT) includes consultants, audiologists, and a strong cohort of physiotherapists, all supported by an encouraging management team. This collaborative environment enables continued professional development, networking, and active involvement in clinical research.
The service has evolved significantly in the past decade, particularly during COVID, to embrace remote care and increase patient access. Claire and her colleagues are also working to elevate their service to a national center of excellence.
Treating Severe Vestibular Disorders: A Holistic, Structured Approach
Claire explains that treating patients with severe vestibular dysfunction, particularly those with bilateral vestibular loss, is highly complex and must be tailored to different subgroups. Some patients come with rare conditions like Neurofibromatosis type 2 (NF2), while others suffer from age-related decline or unexplained progressive vestibular loss in midlife. These individuals often experience debilitating symptoms such as oscillopsia, veering while walking, and repeated falls, often after years of misdiagnoses and specialist referrals.
For this group, Claire emphasises a holistic and psychologically sensitive approach. Many patients arrive feeling demoralised, especially once they understand their condition is chronic. Initial treatment includes reviewing vestibular test results, discussing home and environmental modifications (e.g., better lighting, removing rugs), and introducing strategies to manage anxiety and fear of falling.
Rehabilitation plans typically include daily walking routines and balance training exercises to optimise the 3 balance systems.
Until recently, Claire notes, options beyond this core rehab program were scarce, a gap that new tools like the BalanceBelt could help fill.
Introducing the BalanceBelt: From Cautious Curiosity to Clinical Impact
Claire Potter first learned about the BalanceBelt through her clinic’s monthly journal club, where her team discussed one of the early research papers. At the time, they viewed the device with interest but caution, assuming it would be difficult to introduce into the NHS without more robust data. However, a hands-on demonstration at a professional event (ACPIVR) changed that. After trying the belt herself and receiving a trial unit from the BalanceBelt team, she took the initiative to lead internal testing.
Initially skeptical, Claire questioned whether the device’s non-directional vibratory feedback would be tolerated or helpful for patients. However, given the lack of alternative treatment options for complex bilateral vestibular loss, she decided it was worth trying. The clinical rationale was: “It can’t hurt, and if it helps, that’s a win.” She began trialing the belt on selected patients under strict agreements, making it clear they would need to self-fund if they found it beneficial.
Interestingly, one patient with a functional neurological disorder (FND) felt worse when the belt was active, but better simply wearing it, suggesting that even the physical presence of the device may enhance truncal awareness for some. This highlighted the nuanced ways the belt might interact with different pathologies, especially in patients prone to sensory hyper-awareness or internalisation.
Despite that outlier, Claire reports that most patients with bilateral vestibular hypofunction showed clear improvement. One woman, who had not been able to run for three years, was so moved by her restored ability that she cried during the session. Such moments reinforced the belt’s potential to offer life-changing outcomes when used appropriately.
Case Summary: The Impact of the Balance Belt on a Patient with Severe Vestibular Dysfunction
A patient in her 50s was referred to the balance clinic by her GP, following a history of debilitating vestibular symptoms, including oscillopsia and profound imbalance. She had become unable to drive, leaving her socially isolated and dependent on her husband for mobility. The impact on her personal life was significant, she could no longer care for her two teenage children as she once had, and she experienced panic attacks and anxiety due to her condition.
Upon referral, she was assessed in the multidisciplinary team (MDT) balance clinic, which includes physiotherapists, audiologists, and medical specialists. Diagnostic testing revealed bilateral vestibular hypofunction affecting both semicircular canals and otolith organs. Initial physiotherapy focused on home safety, gentle balance exercises, and lifestyle adaptations, including a referral for occupational health support. However, progress was limited, and her symptoms remained highly provoking.
A pivotal moment came with the introduction of a BalanceBelt despite sizing limitations, the belt provided immediate and visible improvement. During outcome testing, which included mobility and confidence assessments, her performance improved significantly. Notably, she no longer clung to her husband’s arm and was visibly more confident, even smiling for the first time in therapy.
Although the belt did not address all symptoms (e.g. oscillopsia), it successfully boosted her confidence and allowed her to begin re-engaging in physical activity and daily routines. The team emphasised setting realistic expectations for the device: while it does not restore vestibular function, it serves as a powerful adjunct to help patients regain independence and improve quality of life.
Summary: Clinical Insights and Future Implications of the Balance Belt
The BalanceBelt does not replace or restore the vestibular system itself, it does not resolve symptoms like oscillopsia or directly substitute vestibular input. However, what it does, is provide an adjunctive sensory cue that improves confidence, postural control, and functional mobility, making it particularly valuable for patients with bilateral vestibular hypofunction.
Claire notes that the belt could also benefit individuals with unilateral vestibulopathy, especially when one side is severely affected, and compensation is limited. Furthermore, it may have potential applications for patients with persistent postural-perceptual dizziness (PPPD) and other chronic balance disorders but further research is required.
Importantly, Claire emphasises the need for careful patient selection and setting realistic expectations. Future implementation should be backed by further clinical trials and research to identify which subgroups will benefit most. Despite the need for more evidence, the early results suggest the BalanceBelt could fill a critical gap in treatment where current medical and physiotherapy options are limited.
]]>“Intensive exercise and the BalanceBelt brought back my balance – and my joy”
https://balancebelt.net/en/intensive-exercise-and-the-balancebelt-brought-back-my-balance-and-my-joy/
Thu, 21 Aug 2025 09:03:46 +0000https://balancebelt.net/?p=13177The story of Tjitske Tjitske (69) was diagnosed in 2016 with bilateral vestibular loss (BVL) after experiencing multiple episodes of vestibular neuritis in the years before. What followed was a...
Tjitske (69) was diagnosed in 2016 with bilateral vestibular loss (BVL) after experiencing multiple episodes of vestibular neuritis in the years before. What followed was a period in which her balance, energy, and daily functioning were heavily affected. Yet, thanks to intensive training and the help of the BalanceBelt, Tjitske found a way to live her life as fully as possible again.
From an active life to daily struggles
Tjitske running with the (old) BalanceBelt.
Until the age of 60, Tjitske worked as a social worker, first in a high-security forensic psychiatric hospital and later on an acute psychiatric ward. Alongside this, she used her degree in Dutch language and literature to deliver freelance workshops and training sessions.
She led a busy, social life, owned a second home in Greece, and enjoyed life to the fullest, both in Greece and in the Netherlands. But when her balance problems began, everything changed.
“It felt as though I was completely drunk, but without the fun. Walking was hard, I was constantly dizzy, and I had severe oscillopsia*. My world became very small.”
Social activities became a challenge, reading was no longer easy, travelling was too difficult, and eventually, she was forced to sell her beloved house in Greece.
* Oscillopsia is a visual disturbance in which objects in the visual field appear to oscillate, jump, or move back and forth, even though they are actually stationary. People experiencing oscillopsia often describe it as “bouncing” or “shaking” vision.
The road back to balance: move, move, and move again
Despite these challenges, Tjitske refused to give up. She started to move more, first walking, then running, and eventually kickboxing. Today, exercise is part of her daily life: one hour of running or 75 minutes of kickboxing, combined with daily walking and gardening.
She also deliberately exposed herself to busy and noisy places to train her brain to cope with sensory overload. Step by step, she managed to reduce her symptoms to a more stable level.
“No matter how bad I feel, moving always helps. Even on the worst days, I go outside – and afterwards, I feel better.”
She discovered kickboxing during a rehabilitation program in 2022. In November 2024, she started taking classes specifically designed for people with Parkinson’s disease or acquired brain injury (ABI). The combination of complex exercises, loud music, and group training sharpened her brain’s focus, which positively impacted her daily functioning.
The BalanceBelt: more stability, more confidence
Tjitske first tried the BalanceBelt in 2019 through MUMC+. Even during the trial, she noticed how much it helped her keep her balance, and she decided to buy one. She wore it while running on uneven terrain, such as the beach or cobblestone streets, and on difficult days, it gave her the extra stability and confidence she needed for walking outdoors.
Recently, she tested the latest version of the BalanceBelt. The improved support, especially during sport and on days when her symptoms are worse, has been a game-changer. Thanks to its improved features, the belt is easier to use, which now allows her to wear it during kickboxing; she feels more stable, more confident, and moves with greater assurance.
“With the BalanceBelt, I feel more secure, more willing to push myself, and I don’t have to think about every step. It makes a huge difference, especially on uneven terrain or during kickboxing exercises.”
More energy and a greater sense of freedom
Another major benefit of the BalanceBelt is that it reduces her fatigue.
“Normally, my brain is constantly working to keep me balanced – it’s exhausting. The BalanceBelt lightens that load, leaving me with more energy for everything else.”
With the combination of daily movement and the BalanceBelt, Tjitske can get more out of her day, move more freely, and focus on the activities she loves.
Tjitske’s message to others
“Keep moving, even when it’s tough. Don’t give up, every step makes a difference. Tools like the BalanceBelt can help you rebuild your confidence and regain control over your life.”
]]>How a piece of billiard cloth led to medical innovation
https://balancebelt.net/en/how-a-piece-of-billiard-cloth-led-to-medical-innovation-balancebelt/
Tue, 08 Jul 2025 08:28:19 +0000https://balancebelt.net/?p=13134Het bericht How a piece of billiard cloth led to medical innovation verscheen eerst op BalanceBelt.
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Before a medical innovation from the Brightlands Health Campus reaches the patient, a great deal of business and organizational work needs to be done. This process can easily take ten years, as representatives from small and medium-sized enterprises (SMEs) and scientists heard during a presentation in Maastricht on Thursday. The campus is expanding and allocating more space for SMEs.
Maastricht (NL) — Millions of people worldwide suffer from balance disorders. In the best-case scenario, they can walk with a cane. But there are also children who, without assistance, cannot go outside at all—let alone ride a bike. For them, Professor of Clinical Vestibulology Herman Kingma came up with an idea around fifteen years ago: a belt, now marketed under the name BalanceBelt. “So that you fall less easily and feel more confident.”
The BalanceBelt, essentially a balance belt, is a belt equipped with sensors and software that instructs the wearer’s brain to maintain balance. Kingma’s team approached Maastricht Instruments, a company affiliated with the Health Campus, which develops prototypes with a team of thirty engineers: the first step in assessing whether a scientific idea can be turned into a product.
Billiard Cloth Patrick Machiels, director of Maastricht Instruments, recalls that the first prototype in 2013 was made from a piece of billiard cloth by the mother of a researcher. “When more parties and hospitals began showing interest, we continued development. Eventually, we had a belt that cost us €12,000. Patients in the first clinical trials were so enthusiastic that they wanted to pay for it themselves.”
The belt was then transferred in 2018 to the SME company Elitac, which specializes in combining textiles and electronics, and further refined it under the brand name BalanceBelt. In 2021, the invention received the necessary certification and was placed into a separate private company. Convincing hospitals and insurers can easily take several more years, says Charles Pallandt of Elitac.
Children’s Hospital Pallandt: “Clinicians don’t easily abandon existing treatment methods. Even now, the BalanceBelt isn’t reimbursed by all health insurers, because they still need to be convinced of its cost-effectiveness. Currently, BalanceBelt is not yet part of the standard healthcare package. On top of that, medical device approval differs from country to country. We are now allowed to enter the European market. At a children’s hospital in London, we saw that young patients were able to go outside again thanks to our belt. That really gets to you.”
The production cost was reduced from €12,000 to well under €1,000. This became possible thanks to collaboration with an SME on the Bouwberg business park in Brunssum: AIM acts as an independent partner for the production of medical devices and works with companies around the world. The company, which has 55 employees, ensures a reliable supply chain, quality assurance, and final assembly, says sales & engineering manager Emile Arnoldussen.
Arnoldussen points to an image of a device that keeps the temperature in operating rooms at 37 degrees Celsius: “We help start-ups and scale-ups that are a step further along, with cost optimization among other things—but many of our clients are international players. Together with the Health Campus and partners, we also brought the Vibrobot to market: a robot used for complex research.”
The Health Campus has a team that helps develop revenue models for scientific ideas, and it also aims to attract more companies in the medical and life sciences sectors. This would allow ideas to be realized more quickly. In the meantime, 139 companies are now based there, including major players like Medtronic. The City of Maastricht has worked with Brightlands to support expansion. In recent years, some companies had to relocate to Chemelot due to a lack of space. Maastricht city councilor Hubert Mackus says that “significant investment” is being made into the campus at Randwyck: “We hope to attract many more SME companies and are also creating physical space to accommodate them.”
]]>Can an NHS Trust Prescribe BalanceBelt? This Is What You Need to Know.
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Mon, 23 Jun 2025 11:10:23 +0000https://balancebelt.net/?p=13040Het bericht Can an NHS Trust Prescribe BalanceBelt? This Is What You Need to Know. verscheen eerst op BalanceBelt.
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Balance disorders can be life-altering. For patients suffering from conditions such as bilateral vestibular hypofunction (BVH) or uncompensated uncompensated unilateral vestibular loss (UVL), daily activities like walking, shopping, or even standing in a crowd can become daunting. These conditions are even more challenging for patients in the dark. Fortunately, innovative assistive devices such as the BalanceBelt are helping patients regain confidence and independence.
But a common question we hear is: ‘Can an NHS clinician prescribe the BalanceBelt?’ The Short Answer: Yes – and there are various ways to do so.
While the NHS does not yet list BalanceBelt as a standard item available through central procurement, individual NHS Trusts and clinicians can prescribe or acquire the BalanceBelt via a contract or on a case-by-case basis.
Over the past period, we’ve seen increasing interest from NHS clinicians from Trusts such as UCL, Mersey Care and Great Ormond Street Hospital for Children (GOSH), including physiotherapists, audiologists, ENT specialists, and neuro-rehab teams, who have recognised the clinical benefits of the BalanceBelt. They have successfully integrated it into care pathways for select patients.
How NHS Clinicians Are Accessing the BalanceBelt
NHS clinicians are currently bringing BalanceBelt to their patients in the following ways.
Trial Periods Through Clinics
NHS vestibular rehabilitation clinics or specialist physiotherapy teams can trial the BalanceBelt with patients. We provide support and guidance during this phase to ensure both clinicians and patients understand how to use the device effectively (Protocol BalanceBelt for Specialists).
After a positive trial proving the effectiveness of the BalanceBelt to the patient, NHS Trusts have several options for purchasing, either via direct procurement or patient funding.
NHS Adoption Pathway
In 2024, BalanceBelt has been included in a HealthTrust Europe (HTE) Framework Agreement, making it easier for NHS Trusts to adopt BalanceBelt as a treatment option. Becoming part of this framework implies that:
Patients may be provided with a new, effective, and definitive treatment,
The Trust obtains a more efficient solution and costs reduction (please contact us for the business case),
Care providers at the Trust may discharge patients and reduce waiting lists.
BalanceBelt has been awarded a three-year contract (with an optional fourth-year extension) with HealthTrust Europe LLP (HTE) to supply the BalanceBelt. All 386 NHS Trusts in England, Scotland, Wales, and Northern Ireland have access to this Framework Agreement for the Supply of Patient Mobility Products and Services and will enjoy many benefits. Contract awards can be carried out via Direct Award, a method used for awarding standard goods and/or services contracts to the Framework.
Contact the HealthTrust Europe LLP Customer Care team on 0845 887 5000 or via customercare@htepg.com
Individual Patient Purchase via the NHS
Several NHS Trusts have approved individual purchase requests following internal clinical and funding assessments. This usually involves:
Submitting a New Supplier Request (BalanceBelt is registered with several NHS Trusts)
Providing clinical justification, often with supporting documentation such as outcome measures or patient progress videos
Issuing a Purchase Order via the Trust’s finance/procurement team
Patient Self-Purchase (with Clinical Support)
In some cases, patients choose to purchase the BalanceBelt themselves, based on clinician recommendation.
What Are the Benefits for NHS Patients?
Recent case studies from NHS clinics suggest that the BalanceBelt offers:
Improved walking stability and spatial orientation
Reduction in falls and near-falls
Increased independence in daily activities,
Better psychological well-being and confidence.
In fact, one recent case from a UK balance clinic demonstrated marked improvement in a patient with long-standing unilateral vestibular hypofunction who had not progressed through conventional vestibular rehabilitation alone.
For other publications on the effectiveness of the BalanceBelt.
How to Get Started?
If you are a clinician interested in trying the BalanceBelt with a patient, or if you are a patient hoping to explore this option with your care team, we recommend the following steps.
Visit our website for product details and clinical resources.
Contact us directly to discuss trial options, pricing, and NHS-specific processes
Explore our case studies to learn how BalanceBelt is already helping NHS patients
We’re committed to supporting patients and NHS professionals in improving balance care. If you are interested in arranging a trial, would like to present a case for internal funding, or want more information about BalanceBelt, we are here to help.